Survivors’ experiences with healthcare before, during, and after exploitation
Using matrix coding, we examine the number of interview segments coded under trauma-informed care and whether they were coded as positive, negative, or neutral. We then looked at which life stage of the exploitation experience (before trafficking, during trafficking, after trafficking) participants were describing in each interview. As illustrated in Fig. 2, nearly 60% of survivors’ descriptions of trauma-informed healthcare experiences that occurred during the period in which they experiencing exploitation were negative. The majority of their positive descriptions of TIC happened after participants’ trafficking experiences ended.
The positive and negative experiences of survivors are described in greater detail below and when a theme related to trauma informed care was most prominent during a particular stage of survivors’ exploitation experiences. Furthermore, quotes from survivors also specify the stage the experience being described was from: before, during, or after exploitation.
Survivors’ perceptions of trauma-informed care in healthcare settings
Six main themes emerged related to how survivors experienced trauma-informed care in healthcare settings. These included 1) providing non-stigmatizing care, 2) adopting a person-centered approach to treatment, 3) offering options, explanations, and agency, 4) providing consistency, 5) accepting the needs and experiences of gender-diverse survivors, and 6) understanding substance use as a co-occurring issue. We discuss each of these themes in more detail below, mapping these six themes to the SAMHSA principles of trauma-informed care.
Safety
Providing non-stigmatizing care. Many survivor participants described healthcare experiences in which they felt stigmatized by providers. On the other hand, some participants shared experiences in which they explicitly recalled, with appreciation, a lack of stigma.
Feelings related to stigmatization were directly correlated with the feelings of safety, being listened to, and willingness to seek future or continued care. Conversely, some survivors discussed the ways that being stigmatized by healthcare practitioners made them feel unsafe. Stigmatized responses ranged from dismissive or judgmental attitudes, negative beliefs related to substance use disorders, and judgements about survivors’ intention in seeking care.
Some participants shared about times when they sought care during their exploitation or for multiple issues over time and felt judged or dismissed. At times, these dismissive beliefs delayed when individuals sought or received medical care, sometimes at great peril to their health. As one participant shared, “They were trying to act like I was lying or something and then when I finally did get to go to the hospital, my leg was so swollen and I went into a little coma,” (Interview 28, During Trafficking). In addition to dismissive attitudes, judgmental responses from providers about sex work also impacted their health care experiences and utilization. One survivor shared that a provider had a negative reaction to her disclosure of engaging in online sex work, which impacted her willingness to access care and what she disclosed to future providers.
“She just made a face and like she didn't say anything, but like the face alone made it seem like I was garbage and she thought that badly of me and I was like, OK, so I'm not going to tell people I'm doing like actual like in-person stuff…like that stopped me from getting, like… I don't think I got a physical for a very long time after that…I was like, most doctors didn't give me that stigma because I wasn't telling them things. But then I felt like when I did, I always received a very negative response.” (Interview 3, During Trafficking)
Other survivors shared how these stigmatizing behaviors and attitudes signaled that healthcare practitioners were not safe people to share more information with because of their negative or stigmatizing responses. One interviewee explains how exploitation experiences made her particularly sensitive to stigmatizing comments from healthcare providers.
“Comments that might not be overt but that might seem a little bit dismissive or a little bit insensitive, or I would have been sensitive to that sort of thing at that time in my life and just say, ‘Okay, this is not a safe person to talk to. I can't get help from them.” (Interview 23, After Trafficking)
On the contrary, one of the most fundamental practices that participants noted appreciating in healthcare settings was simply feeling seen and supported by medical staff. One participant described how this felt when she was in the hospital during the time she was being exploited and was not ready to self-identify as a victim but still appreciated that the those providing care seemed to identify and understand her distress.
“And so, you know, they'll see something wrong, but they don't want to just come out and ask you what's going on. But you can just tell by the compassion… or them saying, you know, “Do you need help?” But of course, you know, for my situation I'm going to say, “Oh no I don't need no help, I'm fine.” You know? But I really wasn't fine and… and they seen I wasn't fine, and I had a couple of nurses, you know that, you… you know… you can just, you can just tell from the look in their eyes and just their body language, like they knew I was in trouble, but it…it was nothing that they could really do to help me.” (Interview 7, During Trafficking)
Another participant described how she appreciated a provider’s warmth and care even while simultaneously recognizing that this particular provider might not have the specialized skillset required to support her unique needs.
“Was there warmth there? Yes. Was there empathy? Yes. Was she protective over me? Absolutely. Very protective, like a real mother would be – like a biological mother you would think would be. There was a level of the understanding of the complex abuse that I know wasn’t there.” (Interview 15, Before Trafficking).
Providers establishing a sense of warmth and care with these patients is important, even if victims do not choose to self-disclose experiences with exploitation or other victimization in any one specific interaction. This demonstration of support may keep survivors of sex trafficking tethered to healthcare as a resource for support.
Empowerment, Voice and Choice
Adopting a person-centered approach to treatment. A commonly described positive healthcare experiences among participants was feeling like their individual needs and experiences were recognized. For instance, one individual described how much she appreciated when, during a law enforcement interview taking place while she was in the hospital during a period of exploitation, a healthcare provider cleared the room when she experienced distress. The healthcare provider was able to recognize she was having a panic attack and stepped in. She cleared the room saying, “No. Patient first." That really stood out to me. When they did that, I felt like, wow, they're trying to make sure I'm okay.” (Interview 14, During Trafficking).
Other examples of person-centered approach also included seeing the whole person when considering treatment, including identifying and connecting individuals with holistic services. This same participant later shared how when they were receiving care related to a pregnancy after exploitation, the healthcare practitioners she met with her took time to ask additional questions to understand, aside from her presenting health needs, the additional supports she might benefit from as a mother. This participant shared that these, “simple, simple things,” helped her feel very supported (Interview 14, After Trafficking). Across two different healthcare experiences, this survivor found value in the healthcare providers seeing her as a person, recognizing the various aspects of her being and ensuring she had the tools she needed to navigate health challenges.
Survivors were open about the fact that they were unlikely to immediately disclose exploitation in acute care situations or upon meeting an emergency room or medical provider for the first time. Despite this reluctance, some survivors had wanted medical providers to look beyond their acute care needs. Some interviewees shared that providers only addressed what was immediately before them, possibly missing other indicators or information that could have helped connect them to supports sooner, especially during exploitation. Survivors shared how they felt that key information or indicators that could have raised concerns were missed or not followed up on. Examples included a lack of questioning about a teenager who was pregnant before she could legally consent, the home situation of a child who was sexually assaulted, or whether an individual was harmed by a parent or a parental figure. This lack of questioning was a concern for survivors who felt that they were treated seen as a whole person or treated holistically.
A survivor reflected on how providers she encountered during her trafficking experience had never taken the time to check in about her well-being but that she wished they had. She reflects that she would have broken down and potentially shared more about her experiences, but the lack of questioning reinforced her feelings of self-dependence:
“I never felt that the approaches [of healthcare providers]….seemed as if they cared enough, right? Like, to get through to me. I I'd like to believe that if someone that I saw…if I would have seen that genuine sort of ask, then maybe, maybe… not at that moment, but if they kept on like I would, I would have definitely, for sure, broke down right because I needed to keep this strong appearance, because that's who I’ve always [been]….And then it's like nobody's asked, so I need to figure shit out myself. And I'm not going to allow anybody to break me. So as a result, like, I had this wall up because now I'm thinking nobody cares. Everyone always makes me feel like it's me doing something wrong. And so….there was never this approach of like, “hey, are you OK? Are you OK?” I don't think anybody's ever asked me that, like genuinely asked me. Like, “are you OK?”” (Interview 4, During Trafficking)
Instead of inquiring more about her well-being and needs, this survivor felt that providers missed an opportunity to identify risks and concerns. A conversation may have led to identification of trafficking or the connection of the survivor to additional supports.
Offering options, explanations, and agency. A consistent theme among positive healthcare experiences described by participants was being offered clear explanations about treatment plans, and, when possible, the opportunity to have agency over their health care plans. One participant recounted an experience in which she appreciated receiving clear communication from her providers. She shared,
“I do remember having an explanation of like, "This is what the doctor is going to look for," and then the doctors that I actually saw, the specialists were very clear about “here is exactly what I'm looking for and why,” (Interview 27, After Trafficking).
Another survivor described the impact of being asked for her consent and also the opportunity to withdraw consent during a physical exam.
“She just told me that I can take consent away anytime during the exam and that like if I wasn't ready to do the exam on the first visit, that was understandable. And like that was really nice and I actually recommended her to people because of that.” (Interview 4, During Trafficking)
Explicitly obtaining consent and explaining the patient’s rights and options throughout their examination is important in offering the survivor agency and leveling the power dynamic between the patient and the provider, which is critical for survivors of minor sex trafficking who, in their capacity as minors and survivors of sexual exploitation, have experienced diminished or restricted autonomy.
Participants also described that healthcare navigators or specialized victim services program staff with knowledge of healthcare systems and providers can bridge the gap between survivors and healthcare systems, particularly when providers are not trauma-informed. For emergency medicine staff, understanding the role of these individuals and identifying ways to collaborate may be key for helping survivors meet their healthcare needs.
Many CSEC survivors described how options or choices around treatment were not discussed or provided to them when accessing healthcare. Having choice regarding whom they received care was important to survivors, but some described lacking options about providers. One survivor described her experience receiving care from a male provider even though she had a strong preference for female providers:
“As a child and then as an adult after… like I said, seeing the experiences with my family members, um it was just never something I felt safe. And especially with men doctors I just um it it was just like, OK, this is the only person I could see I’ll I'll just shut my eyes, go through it and keep it moving um so it wasn't like I don't I don't want to engage with you. I don't want to talk with you. Just do what you have to do and let’s just move on.” (Interview 4, During Trafficking)
Survivors also shared instances where treatment approaches were not discussed with them or they felt pressured to make a particular decision, often around pregnancy or childbirth. During labor, one survivor shared how the doctor pressured them to take medical steps to progress their labor: “When I gave birth to my first child, I felt like that particular provider pressured me into breaking my water and just hurrying. I felt backed into a corner and pressured to give birth on his own accord, on his clock, on his time,” Interview 26, After Trafficking). Survivors of sex trafficking who have experienced periods of loss of control over their own body during exploitation have particularly strong needs to understand healthcare decisions and have agency in healthcare processes.
Acknowledging known victimization but allowing survivor to choose how much to disclose. One of the practices participants identified as contributing to positive experiences within healthcare was, if practitioners were aware of their exploitation, expressing an understanding of their victimization experiences without judgement or excessive probing. Many survivors described interactions with practitioners that included talking about experiences or healthcare needs related to their exploitation that were sensitive in nature, such as discussing sexually transmitted diseases, substance use, or violence. In one interview, a survivor described a provider’s response to her exploitation that was a positive experience because the provider reacted to her sharing that she had a long history of sexual trauma without asking follow up probing questions or visibly reacting in any way (Interview 4, During Exploitation). Another survivor reiterated that providers expressing an understanding of their victimization experiences, and a general proficiency with sex trafficking victimization and exploitation in general without asking additional unnecessary questions felt particularly helpful (Interview 3, After Trafficking).
Additionally, some survivors talked about experiences with disclosing or wanting to disclose their history of exploitation to healthcare providers but not wanting to manage the reactions of providers. As one survivor said,
“Here I’ve had great experiences with providers, but they also get very emotional, which makes it hard to feel comfortable. They’re like, “Oh my god, I can’t believe that happened to you.” And you’re like…you don’t want it to be personalized. At least I don’t. I don’t want to feel awkward or weak.” (Interview 29, After Trafficking)
When practitioners responded without judgement and acknowledged their experiences or needs, survivors described how these interactions helped foster a sense of safety and trustworthiness with healthcare practitioners. Critically, healthcare. providers could signal their understanding of exploitation, thus signaling that they are a safe person in which to discuss medical issues that may relate to exploitation without the survivor needing to educate the provider about what exploitation is or tell their story again, all of which might be traumatic.
Collaboration and Mutuality
Consistency. A first step in any collaborative and trusting relationship is consistency. This is particularly critical for people who have survived minor sex trafficking since they have had transactional relationships that are often inconsistent and not dependable. A survivor describes the importance of consistent healthcare provider relationships as she works on wellness in the years after leaving an exploitive experience.
“I continued seeing the regular doctor and also one of their counselors, and a psychiatrist for medication, obviously for post-traumatic stress disorder. I had a lot of depression, anxiety. There was a lot. It was really hard after just being able to come back into the community and transition to a regular normal life. I definitely needed a lot of help. I still stayed connected with all these people. They were great. They really were everything and anything that I could have possibly needed, they helped me with. They were awesome.” (Interview 30, After Trafficking)
Similarly, another participant described her relationship with a provider she had been seeing for more than twenty years, and the value she placed in their sustained relationship.
“I've had the same doctor for over 20 years. I absolutely adore him…I'm not just like a person to come in and do it and leave. He’s, he's great and he's like, you know, ‘You're a little older now. I think it's time you have this scan, that scan. Let's check out this. I want to make sure that you're healthy.” And he tells me, ‘You put on a little bit of weight. So… eat less, move more.’ He's so personable. I love my doctor.” (Interview 1, After Trafficking)
Cultural, Historical and Gender Issues
Providing gender-affirming care. In interviews with individuals who were transgender or non-binary, interviewees discussed negative experiences with healthcare professionals who misgendered them, made derogatory comments about their gender identity, or discredited or ignored their questions or experiences as they considered their gender identity. A transwoman who had transitioned later in life discussed raising her questions about her gender identity when she was young and the provider responding in a derogatory way, “he said he was going to send me to nut house. He said, ‘What?’ He took it personally. He was angry,” (Interview 24, During Trafficking). When describing the impact of these experiences, one survivor shared how not knowing how providers will respond or accept them causes anxiety when they seek care.
“I would say the anxiety provoking part– besides just like seeing a new doctor and you always get a little bit of like, ‘Will this doctor be good for me? Will they misgender me?’ That thing. There were cases of like, I would get the medical reports or statements after they would use the wrong pronouns and stuff like that. There was some discomfort in that way.” (Interview 27, After Trafficking)
Understanding substance use as a co-occurring issue. Additionally, survivors commonly discussed the need for medical practitioners to have a stronger understanding of the specific needs of sex trafficking survivors with co-morbid substance use disorder issues. Survivors with these concerns, mentioned negative experiences related to stigma about substance use disorders. There were two main themes that emerged related to substance use disorder treatment: 1. Stigma about individuals experiencing substance use disorders; 2. Judgments about individuals with substance use histories.
Substance use disorders were discussed by some survivors, sometimes developed during their exploitation experience as a coping strategy or a control tactic used by traffickers. When seeking healthcare, survivors described how practitioners often did not respond to them in trauma-informed ways. Survivors shared how they were not provided comprehensive care because of perceptions about them as an addict. One participant described being treated as “just another addict,” and receiving “minimal care” before being sent home without being asked about whether she was being exploited (Interview 1, During Trafficking). During these healthcare experiences, individuals with substance use disorders often felt they received subpar care.
Judgements about the intentions for survivors with substance use disorder histories also contributed to negative experiences, specifically assumptions that they were or would be medication seeking. Both survivors who were currently in exploitation and using substances and those whose exploitation and substance use were in the past shared these experiences. At times these attitudes impacted whether individuals received care because practitioners assumed they were making up medical issues in order to access medications:
“I remember at one hospital visit, I had told them there was something seriously wrong with me. My chest was out to here. I did not deny the fact that they were going to find drugs in my system, but I was like, "Seriously, something's wrong." The nurse that dealt with me told me I was drug-seeking and sent me home…The next day, my temperature was at 103.7 and I had to have life-saving surgery. My rib had been broken from an incident in human trafficking.” (Interview 28, During Trafficking)
Others who were prescribed medication were either pre-emptively told not to request more medication or when they did, were accused of medication seeking. One survivor, whose substance use was 20 years in the past but documented in their medical history, shared how it still impacts their medical treatment:
“When I broke my wrist, I fell down and went to a concert and I broke my wrist and I went to the doctor and he gave me pain meds. And he said, “do not call me then tomorrow and tell me your dog ate them, you lost the pills, someone stole them because you will not get anymore.” That was a direct result of my file and I was like, you know what? Oh, yeah, that that was made me angry.” (Interview 1, After Trafficking)
As this quote reflects, survivors can maintain sensitivity to judgment and stigmatization well beyond their experiences with exploitation.